MrsTaborJet Posted March 14, 2008 Share Posted March 14, 2008 Samantha left us yesterday, she was only 17. Sammy, as she was fondly known, suffered from an incredibly debilitating illness called Alstrom Syndrome. It is a very rare disease which has affected about 300 people worldwide. From birth she endured many catastrophic events... congestive heart failure, liver disease, kidney failure, diabetes, renal failure, skin disorders, scoliosis, asthma and lung disorders, blindness, deafness, weight gain. She required constant medical care and had a team of doctors overseeing her care. She was a beautiful child who loved cheeseburgers, unicorns and Harry Potter. She was the most inquisitive child I ever knew and could tell you all about Yu-Gi-Yo, even when you didn’t want to hear about it. She wanted to know you and she wanted to be known. She wanted to understand and wanted to be understood. Her engaging personality and inquisitive mind were the only things that didn’t seem to be affected by her illness. And this is what I will always remember about Sammy, that she knew she was different, but acted like it was just the way it was. She accepted her life much easier than it was for the rest of us to accept what was happening to her. I cannot imagine what it must feel like to bury a child; there are no words of comfort that can be said to minimize the pain. There is no way to ease her younger sister’s loss. They are amazing parents who loved Sammy and sacrificed everything and gave her the best life she could have. She was not meant to be in this world long, but she exceeded doctor’s expectations and lived well beyond others afflicted with this syndrome. Thanks for reading. Link to comment Share on other sites More sharing options...
afosomf Posted March 14, 2008 Share Posted March 14, 2008 Samantha left us yesterday, she was only 17. Sammy, as she was fondly known, suffered from an incredibly debilitating illness called Alstrom Syndrome. It is a very rare disease which has affected about 300 people worldwide. From birth she endured many catastrophic events... congestive heart failure, liver disease, kidney failure, diabetes, renal failure, skin disorders, scoliosis, asthma and lung disorders, blindness, deafness, weight gain. She required constant medical care and had a team of doctors overseeing her care. She was a beautiful child who loved cheeseburgers, unicorns and Harry Potter. She was the most inquisitive child I ever knew and could tell you all about Yu-Gi-Yo, even when you didn Link to comment Share on other sites More sharing options...
Jet Moses Posted March 14, 2008 Share Posted March 14, 2008 The one who plants the tree is not the one who will enjoy it's shade. Link to comment Share on other sites More sharing options...
Thai Jet Posted March 14, 2008 Share Posted March 14, 2008 So sorry MTJ for the loss of Samantha. Sounds like she was a very special child of God. Be at peace knowing she is with Him now. Link to comment Share on other sites More sharing options...
Maxman Posted March 14, 2008 Share Posted March 14, 2008 R.I.P. Sammy. May God hold you and show you that his love is real. Link to comment Share on other sites More sharing options...
NJ Posted March 14, 2008 Share Posted March 14, 2008 Sorry for your loss Mrs. TJ. It's my belief that Samantha has it better now then she ever dreamed possible. Just my belief but you're welcome to share it if you like. Link to comment Share on other sites More sharing options...
Kidhuman Posted March 14, 2008 Share Posted March 14, 2008 Samantha left us yesterday, she was only 17. Sammy, as she was fondly known, suffered from an incredibly debilitating illness called Alstrom Syndrome. It is a very rare disease which has affected about 300 people worldwide. From birth she endured many catastrophic events... congestive heart failure, liver disease, kidney failure, diabetes, renal failure, skin disorders, scoliosis, asthma and lung disorders, blindness, deafness, weight gain. She required constant medical care and had a team of doctors overseeing her care. She was a beautiful child who loved cheeseburgers, unicorns and Harry Potter. She was the most inquisitive child I ever knew and could tell you all about Yu-Gi-Yo, even when you didn’t want to hear about it. She wanted to know you and she wanted to be known. She wanted to understand and wanted to be understood. Her engaging personality and inquisitive mind were the only things that didn’t seem to be affected by her illness. And this is what I will always remember about Sammy, that she knew she was different, but acted like it was just the way it was. She accepted her life much easier than it was for the rest of us to accept what was happening to her. I cannot imagine what it must feel like to bury a child; there are no words of comfort that can be said to minimize the pain. There is no way to ease her younger sister’s loss. They are amazing parents who loved Sammy and sacrificed everything and gave her the best life she could have. She was not meant to be in this world long, but she exceeded doctor’s expectations and lived well beyond others afflicted with this syndrome. Thanks for reading. So sorry for your loss Mrs T. May she RIP. Thoughts and prayers to her friends and family. Link to comment Share on other sites More sharing options...
Bob Posted March 14, 2008 Share Posted March 14, 2008 My condolences. Was she a relative or a friend? Link to comment Share on other sites More sharing options...
Boozer76 Posted March 14, 2008 Share Posted March 14, 2008 I am very sorry for your loss Mrs T. I will keep Samantha in my prayers. Link to comment Share on other sites More sharing options...
joewilly Posted March 14, 2008 Share Posted March 14, 2008 my sincerest condolences to the family & friends of sammy. how tragic for those around her Link to comment Share on other sites More sharing options...
Green DNA Posted March 14, 2008 Share Posted March 14, 2008 Sorry to hear that Mrs. T, it seems very unfair when such a young person passes. RIP. Link to comment Share on other sites More sharing options...
PhinHater Posted March 14, 2008 Share Posted March 14, 2008 Really sorry to hear about your loss. These things are not easy. God Bless... Link to comment Share on other sites More sharing options...
L.I.MikeBleedsGreen Posted March 14, 2008 Share Posted March 14, 2008 Sorry to hear that Mrs. T, may she rest in peace,The Good die way to young.She is in a better place now. Link to comment Share on other sites More sharing options...
DHJF Posted March 14, 2008 Share Posted March 14, 2008 My sincerest condolences. Link to comment Share on other sites More sharing options...
SouthernJet Posted March 14, 2008 Share Posted March 14, 2008 My prayers go out to you.. Link to comment Share on other sites More sharing options...
SoFlaJets Posted March 14, 2008 Share Posted March 14, 2008 may a Kind and Loving God embrace her Link to comment Share on other sites More sharing options...
Jetheelz Posted March 14, 2008 Share Posted March 14, 2008 Sorry to hear about the loss, MTJ. May she rest in peace. Link to comment Share on other sites More sharing options...
PeterNorth09 Posted March 14, 2008 Share Posted March 14, 2008 Sorry for your loss. Link to comment Share on other sites More sharing options...
TaborJet Posted March 14, 2008 Share Posted March 14, 2008 My condolences. Was she a relative or a friend? Brother in-law's niece. Sammy was a special girl. Very selfless, always curious, and extremely outgoing. For someone born with the physical limitations she had, she wasn't one to complain about it, and she made the most of what she had. A very bright light went out when she passed. Link to comment Share on other sites More sharing options...
MrsTaborJet Posted March 14, 2008 Author Share Posted March 14, 2008 Thank you everyone for your kind words. Truly, it is appreciated. As Tabor mentioned, Sammy is the niece to my brother-in-law and I've known her for little over 10 years now. Mostly saw her at lots of summer picnics, family get togethers and holidays. She commanded lots of attention, but we didn't mind giving it to her. She's in a better place, pain free, and in time her parents and sister can move toward a different, yet new life, never forgetting the love she gave and role she played in all our lives. Link to comment Share on other sites More sharing options...
GM Posted March 15, 2008 Share Posted March 15, 2008 Such a shame. My thoughts go out to you and your family. RIP Link to comment Share on other sites More sharing options...
jaspegs Posted March 15, 2008 Share Posted March 15, 2008 Wow. I am very sorry to hear that. Only the good die young. Link to comment Share on other sites More sharing options...
faba Posted March 15, 2008 Share Posted March 15, 2008 My condolences to you and the family Mrs. Tabor Jet. Link to comment Share on other sites More sharing options...
Smizzy Posted March 15, 2008 Share Posted March 15, 2008 Terrible. Sounds like she is a better place. I'm sorry for your loss guys. Link to comment Share on other sites More sharing options...
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